JFIAC 2025: Round table 6

The patient and their data: The patient and their data: an ambition to be carried collectively?

This round table, moderated by Anny Tirel (AI & Cancers Sector), will explore the concept of hybridisation: how to build bridges between worlds that intersect without always understanding one another. From the city–hospital relationship to new forms of patient engagement in research, the discussion will sit at the crossroads of worlds, to rethink the future of care and research.

Moderator

Anny TIREL
Seintinelles member and Chair of the Stakeholders Committee of the AI & Cancers Sector
Anny Tirel holds a PhD in biochemistry & immunology from Pierre and Marie Curie University, Paris. After 28 years at MSD in clinical research and then in medical affairs in charge of real-world evidence studies, public-private partnerships, and early access, she chose to devote herself to various activities related to scientific research and the involvement of patients and citizens in research. She is President of the Stakeholder Committee of the AI & Cancer Sector, Member of SEINTINELLES, co-lead of the “Patient Adherence” group for the CSF Health Data, and is a member of the Scientific Councils of the INSERM Transfert early development unit and the MSDAVENIR endowment fund.

Speakers

Jehan-Michel BEHIER
France Medical Director at Bristol-Myers Squibb

Jehan-Michel Behier holds an MD from the University of Amiens and has 25 years’ experience in the pharmaceutical industry across a wide range of therapeutic areas: haematology, oncology, inflammatory bowel disease, rheumatology, metabolism and vaccines.

He currently holds a position at Bristol-Myers Squibb as Medical Director and is a member of the Executive Committee.

In this capacity, he is responsible for three medical departments: Innovative Medicines, Oncology and Haematology.

Mario DI PALMA
Oncologist at the Gustave Roussy Institute

Dr Mario Di Palma is a medical oncologist and Specialist Practitioner at Gustave Roussy, Villejuif, within the Cancer Centres network.

After serving for 15 years as Head of the Outpatient Department at Gustave Roussy, he held the role of Medical Director of the American Hospital of Paris for 3 years. He is currently Mission Officer at Gustave Roussy for external collaborations, healthcare institutions and community-based care. He also contributes to the rollout of remote monitoring in everyday practice. His clinical activity focuses on urological cancers.

He is particularly involved in the organisation and coordination of care, especially between community-based care and the hospital, and in the development of connected health. Mario Di Palma is Vice-President of the Francophone Association for Supportive Oncology Care (AFSOS) and a member of the “Ethics and Cancer” Committee of the French National League Against Cancer. He is Co-President of the Onco94 Care Coordination Support Scheme.

As Head of the University Diploma “Coordination and Connected Health” (Paris-Saclay University), he contributes to numerous teaching activities in oncology and supportive care.

Gabrielle HALPERN
Philosopher
Holding a PhD in philosophy and a graduate of the École Normale Supérieure, Gabrielle Halpern worked within the offices of the Minister of the Economy and Finance, the Secretary of State for Trade, Crafts, Consumer Affairs and the Social and Solidarity Economy, the Secretary of State for Research and Higher Education, and the Keeper of the Seals, Minister of Justice, as “Foresight and Speech Adviser”, before co-leading a startup incubator and advising companies and public institutions. For nearly sixteen years, her research has focused in particular on the notion of hybridisation as a way of building bridges between worlds. She is the author of several books, including the essay “Tous centaures ! Eloge de l’hybridation” (Le Pommier, 2020), “Penser l’hospitalité” (Editions de l’Aube, 2022) and “Créer des ponts entre les mondes” (Fayard, 2024).
Co-founder and CEO of Seintinelles
Guillemette JACOB

Guillemette Jacob began her career in marketing within major companies (Danone, Eurostar, L’Oréal), where she developed skills in communication, digital and relationship marketing, and engagement. Following her experience as a caregiver and then as a patient, she now applies her skills to cancer research. She is the co-founder and head of Seintinelles, whose mission is to build a direct, reciprocal and lasting relationship between citizens and researchers, and to facilitate their collaboration, for research that is more efficient, more relevant and with greater societal impact.

The Seintinelles community now includes more than 43,000 citizens who, over the past 12 years, have taken part in 68 studies, generating more than 115,000 research participations.

Guillemette also serves on several scientific and ethics committees, including the INCa’s health and scientific democracy committees, with the aim of contributing to ever greater democracy in research.

Laure GUÉROULT-ACCOLAS
Founder and Director of Patients en Réseau